Akron Children’s Hospital Research to Define Standards for Pediatric Palliative Care
Ohio-based Akron Children’s Hospital is working to develop professional standards for high-quality pediatric palliative care. Current standards of care for most home-based pediatric hospice and palliative care were derived from models designed for adults, based on data that precede the COVID-19 pandemic. This research will seek pediatrics-specific practices as well as account for any changes that occurred due to the outbreak. Researchers will conduct 88 interviews with patients ages 11 to 26 about their priorities, goals, values, and end-of-life decisions.